A map of the world is reprojected to size countries based on the population of those living with HIV. South Africa is bright red and the largest country in the world when you make the map this way.

Across Women's Lives

In South Africa, HIV rates are rising in young women and girls. Our new series looks at the reasons why.

Across Women's Lives meets those on the front lines of the fight to stop the rising rate of HIV in young women.


Advocates say they’re beginning to curb HIV transmissions.

At the International AIDS Conference in Paris last week, officials released numbers showing improvement: New infections of children fell by half from 2010 to 2016. AIDS-related deaths have also fallen about 50 percent from their 2005 peak, when the disease killed 1.9 million people.

“This will probably be, in history, the first pandemic that we will be able get control of without a vaccine or a cure,” says Deborah Birx, the US Global AIDS Coordinator who oversees the President’s Emergency Plan for AIDS Relief (PEPFAR).

Controlling the disease requires a multi-pronged effort involving $19 billion in aid and relies on antiretroviral therapy, circumcisions and other interventions to reduce transmission and keep people healthy.

Swaziland has the highest HIV prevalence in the world at 28.8 percent. In July, officials celebrated halving Swaziland’s HIV infection rate. But in a neighboring country, for a select group of people, HIV rates are rising. Across Women’s Lives travels to South Africa to find out what’s happening for women and girls there.

Globally, HIV rates have stabilized over the past
15 years
.
But global and regional averages can be misleading.
Almost half
of people living with HIV live in East and Southern Africa.
There, public health officials are working to control the transmission of the disease in a new population of young people.
In 2016, PEPFAR surveys found
3 countries
in Africa with measurable progress.
But those rates don’t show the whole picture.
Nearly
1 in 5
of those living with HIV globally call South Africa home.
More than
7.1 million
South Africans are HIV positive and public health officials expect to spend
$2.5 billion
in 2017 to check the disease.
But in South Africa, young women contract HIV at rates twice as high as young men.
This series looks at the effort to stop rising HIV rates in young women and girls.
Source: UNAIDS

Please refresh this page to see the animated charts.

According to a report from the NGO Avert, “poverty, the low status of women and gender-based violence (GBV) have been cited as reasons for the disparity in HIV prevalence between genders, with GBV attributable to an estimated 20–25 percent of new HIV infections in young women.”

South Africa is home to one of the highest rates of rape in the world. The law changed in 2007 to include a better definition of rape, which previously had only covered vaginal penetration of a woman.

"We’ve got to address the sexual violence in our country because that is really driving HIV in this country," says Marlene Wasserman, the host of a popular talk radio show where Wasserman answers questions as Dr. Eve. "One of the things we know is that a contributor towards men raping, is if they themselves were survivors of trauma, or victims of trauma, or if they themselves have witnessed trauma."

South Africa has one of the highest rates of rape in the world

While not a perfect comparison, the United States had a rate of 38.6 rapes per 100,000 people in 2015, also a significantly higher rate than most other countries in the world. Rates in South Africa are falling, but are still so much higher than the rest of the world.
Note: For South Africa numbers, the years shown in chart refer to the period from April 1 of the year before to March 31 of the year shown. The graph above shows rapes, not sexual offenses, reported to the South African police. It is difficult to compare rape rates in different countries because of different definitions of rape and sexual assault, but US figures are included to show the vastly higher rate in South Africa. It is also impossible to measure how many rapes are not reported to police.
Source: Africa Check rape statistics in South Africa, UN population data, UN Office on Drugs and Crime
Alex Newman / PRI

"You’ve got people who are economically, absolutely, absolutely poverty stricken, and powerless," Wasserman says. "And so when you have that, as a foundation of men who are powerless, and not able to provide for themselves or a family, there’s a huge amount of anger that happens. And when there’s a huge amount of anger, there’s a huge amount of violence. Male-on-male violence is huge in this country. And it’s expanded into male-on-female violence."

But there’s another factor that also is playing a major role in South Africa’s HIV problem.

‘It’s insanely wealthy’

Researchers say young women are at a greater risk because of early sexual activity and relationships with older men who are already HIV positive.

“Instead of having relationships with their age cohort, they were having relationships with men about seven to eight years older, who are already HIV positive,” Birx says. “It was the age differential that really resulted in the [higher] risk factor to young women.”

Almost half of young women report sexual activity by age 18

Source: South African Medical Journal, 2015
Alex Newman / PRI

In some cases, this relationship is characterized by the use of the social hashtag #blessed. In South Africa, a “blesser” is an older, wealthier man who can “bless” a younger woman with gifts.

“The Blesser culture is nothing new,” explains Nolwazi Mkhwanazi, a medical anthropologist at the University of the Witwatersrand in Johannesburg, who has studied teenage pregnancy in many communities in South Africa. “It used to be called transactional sex; it used to be called intergenerational sex.”

That intergenerational sex is a driver of HIV infections in young women. The older men often have HIV and then pass the disease on the young woman.

“These blessers are high risk men,” Wasserman explains. “These are men who are probably married, and they’ve got multiple partners. And they’re not using condoms.”

But the rise of smartphones and camera phones has changed the practice.

“It’s happening literally in my phone and all around me,” says Lebohang Masango, 26, who is writing a dissertation about the blesser culture. “It’s very possible that blessers were always around, but it’s just now — because of the highly narcissistic quality of Instagram — we get this insight into how these people are living.”

Masango says the use of #blessed on Instagram exploded in South Africa in December 2015. Being #blessed is similar to having a “sugar daddy,” but with differences.

“When the whole blessers thing exploded, it was about the sheer obscenity of the wealth,” Masango explains. “It was insanely wealthy. Many people are not accustomed to the levels of luxury consumption that were being displayed, especially from relatively unknown young women on social media.”

Some women who seek out blesser relationships are from South Africa's middle class and already have some money to buy clothes and makeup to attract a blesser, Masango says.

"Sandton (a wealthy neighborhood in Johannesburg) is the richest square mile in Africa," Masango says. "It has beautiful restaurants, beautiful nightclubs, a lot of the time when these relationships are solidified, it happens because they met in these areas. You have to have access to that money to begin with. You have to spend money for a blesser to look at you and say, 'I want her on my arm, I want to take her to Dubai.' "

Jokes are even made about how to tell how serious a "blesser" is. A cartoon in South Africa shows levels of blessers. A level one blesser can buy a girl phone credit; a level five blesser takes her on vacation to Dubai.

“[The blessee] wants the three C’s: she wants the cash, the credit card, and the car,” Wasserman says.

For her research, Masango has been seeking out women who defy the stereotypical blesser relationships.

“One young woman, she uses Tinder in order to meet older men,” Masango says. “She’s incredibly firm in her beliefs and very unapologetic about how she feels about being compensated for her time in romantic relationships. 'You pay for my time, you’re paying for my attentions'. She’s studying engineering so she could be studying and spending her energies on herself at a particular time so he must pay for her time and her emotional labor if she will be spending that time with him, instead. She just does this because it’s fun and she refuses to engage with men in ways that are not materially beneficial to herself. That already is a break from the dominant narrative.”

Masango says the women she has met in her research are older — in their early and mid-20s and speak responsibly about HIV prevention.

“The young women I’m studying with really [have] amazing sexual health practices,” she says. “They test before they sleep with anyone. They insist on condoms. They are the people — all of those advertisements — it reached them and it resonates and it works in their lives. They protect themselves even as they’re doing something as risky as having multiple concurrent partner sex.”

Masango’s research matches what PEPFAR has been finding.

Birx, with PEPFAR, says surveys have shown that young women know about HIV, but not all the education efforts seem to work.

“The young women had incredible knowledge about HIV, but none of them believed they were at risk for getting HIV,” she said.

Jabulile, a high school student in South Africa, poses in front a green field.

Jabulile, 17, is a high school student in Khalytsha, a partially informal township in Western Cape, South Africa. Jabulile is a radio reporter at her school and the show often talks about sex and pregnancy. "I have been close with someone who is HIV positive, but like, the way they live their life, it made me believe HIV isn't that much of a big deal," Jabulile says. "It's in your blood, it doesn't affect your personality at all. It doesn't mean you should change who you are and how you define life."

Credit:

Jasmine Garsd / PRI

Still, anthropologist Nolwani Mkhwanazi says talking about sex is a really hard thing to do in South Africa.

“Even though sex ed is part of life, life orientation, teachers, especially in rural areas, find it very difficult because of cultural ideas of who has the right to speak about sex and when,” Mkhwanazi says. “It's very different to teach sex education, including ideas around contraception. They can't get this information from nurses and hospitals either because of the same ideas.”

The 90-90-90 goal

HIV officials use something called 90-90-90 or the HIV cascade to describe their plan for defeating the disease.

It’s an approach to curbing the epidemic that tries to bring down the rate of infection and, over time, eradicate the disease. The goal: 90 percent of people living with HIV know their status; 90 percent of those who know their status are on antiretroviral therapy (ART) and 90 percent of those on ART achieve viral suppression by 2020.

In some countries, PEPFAR and other public health groups have made massive progress toward 90-90-90 targets.

In July, PEPFAR announced that Swaziland, Zimbabwe, Malawi and Zambia are nearly there.

Progress toward 90-90-90 goals

Surveys conducted last year showed significant progress in four countries.
Source: PEPFAR
Alex Newman / PRI

The data for Swaziland, Zimbabwe, Malawi and Zambia is from a 2016 PEPFAR survey. In South Africa, 86 percent know their status; 65 percent are on ART and 56 percent on ART are virally suppressed, according to UNAIDS.

PEPFAR has funded voluntary male contraception and antiretroviral drugs. Once a person’s viral load is suppressed with ARTs, the person is likely to live a longer, healthier life, and the likelihood of transmitting HIV plummets — it can be as effective as consistent condom use.

PEPFAR was established in 2003 by President George W. Bush and was reauthorized in 2008 and again in 2009 under Barack Obama. It’s not entirely clear if funding for PEPFAR will change during the Trump administration. In April, Bush defended the program in an op-ed in the Washington Post: “Saving nearly 12 million lives is proof that PEPFAR works, and I urge our government to fully fund it,” he wrote.

South Africa has largest population living with HIV

Source: UNAIDS
Alex Newman / PRI

Since it’s inception, PEPFAR reports it has prevented nearly 2 million babies from being born with HIV, supported more than 11.5 million people on ARTs and provided HIV testing and counseling to 74.3 million people.

It is unclear exactly how the Trump administration will fund PEPFAR. Unlike other agencies, PEPFAR is not specifically targeted for drastic cuts, but the budget submitted to Congress calls for big cuts — $13.5 billion to foreign aid programs like USAID, many of which contribute to PEPFAR’s bottom line — that many think will have devastating effects in Africa.

Intervention before transmission, not after

In 2012, officials added a new drug to their toolkit. PrEP, which stands for pre-exposure prophylaxis, is a pill that can be taken daily (studies are underway exploring other methods of taking the drug) and can prevent the HIV virus from replicating in a person’s blood. The WHO identified the drug as a preventative tool in 2012; in 2014 the CDC began recommending its preventative use in high-risk populations.

In the United States, PrEP, usually available under the drug named Truvada, is available mostly to gay men. In 2016, drug manufacturer Gilead reported that about 79,000 people had prescriptions. Of those, 60,872 were men and 18,812 were women. Researchers said use picked up in major cities with large gay populations where advocacy groups encouraged men to use the drug. Uptake by women is still low, though.

To be sure, in the US PrEP can be quite expensive. For those without insurance, it can be $1,300 a month or more. Even for those with insurance, co-pays and deductibles can still make the drug several hundred dollars a month.

In South Africa, only sex workers are given free access to PrEP, but the government plans to expand it to young women. For now, there are a number of trials investigating different methods to administer PrEP. The current method, a once-a-day pill, is sometimes a regimen that cannot be followed, so drug companies are testing an injectable PrEP that lasts 8 weeks.

Investigators are also doing trials on a slow-release vaginal ring.

Two hands hold a white vaginal ring. The hands make almost a heart-like shape.

Ziynda holds on the of the vaginal rings used in a trial at the Desmond Tutu HIV Foundation. Vaginal rings can be used for birth control, but the trial is adding PrEP to the ring to reduce the risk of contracting HIV. "God created us in a very special way as women," Ziynda, 32, says. "Because who knew that you can have something inside of you that stays with you but you don't feel it?" AWL is not publishing the last names of young women featured in these stories.

Credit:

Jasmine Garsd / PRI

"It's a silicone ring and it's impregnated with an anti-retroviral," says Dr. Katherine Gill, a medical officer leading the trials at the Desmond Tutu HIV Foundation in Cape Town.

Gill says that the ring, if proven safe, could "avert at least a million HIV infections [globally] over the next 20 years."

Reporting by Andrea Crossan, Jasmine Garsd and Alex Newman. Produced by Sophie Chou, Alex Newman and Kuang Keng Kuek Ser. Edited by Christina Asquith and Jonathan Kealing.

Our series POSITIVE: The stories of young women and HIV in South Africa begins Friday with the story of one teenage girl who discovered that she was HIV positive at the same time she found out she was pregnant. Join us from Aug. 7-11 for stories about the blesser culture, PReP tests and how women are defining themselves as “HIVictors” in this battle.

In Health & Medicine Across Women's Lives Development.

Tagged: HIV/AIDS health South Africa Africa.